
Today's
Mommy Talk question:
Your biggest challenge of motherhood: how things were when baby was first born, how things changed as time went on and what type of challenges are you facing right now?
Besides the whole challenge of being a new mom and having a newborn in the house?! I had a couple challenges that stand out.
First, I think obviously, was dealing with Kayla's diagnosis. The harsh reality of not just leaving the hospital with your newborn and going merrily on your way; instead it was dealing with the reality that
"oh my gosh my child has "something" we're going home from the hospital with a diagnosis."Not only did I have to deal with how that felt for myself and worried about what that meant for our future, and her future, but also how to tell our family and friends and what would they think? Would they accept her? Support us?
About a week or so after Kayla was born I came across the
Welcome to Holland poem/essay. I know most people either love it or hate it. For me I loved it. I didn't dissect it, I didn't read different meanings into it, I just read it for the simple statement it said to me.
By the time I finished reading it I was crying. What I took away from it was all summed up in the last sentence. Basically saying if you spend your life mourning you may never be free to enjoy the good and beautiful things.
That spoke to me. It made me realize that this diagnosis wasn't "all bad" - it was just something different, and different isn't bad. It was just something we were going to have to learn about and deal with. It made me start seeing my daughter as just that -
my daughter - and not just her diagnosis.
The other challenge I dealt with was nursing and Kayla's weight gain - or lack thereof. I nursed her till she was a little over a year old, but I don't think in the beginning I ever felt comfortable, or competent enough. I just didn't
know if she was actually nursing because of hunger, or because of comfort. I didn't
know if she was really getting any nourishment - if I was producing milk. I pumped and would get a good amount doing that, but I didn't know if she was getting the same amount out. I had heard/read that babies with Down syndrome can have a hard time nursing because of low muscle tone, so I always worried about that - if she was getting enough, nursing long enough, if she was doing it
right.I just couldn't tell with Kayla. She didn't cry that often and she slept a lot. She hardly work up the first night we brought her home. At her 2 week check up she wasn't even back to her birth weight. Maj. S told me to wake her up every 3 hrs if she wasn't waking up on her own; I would do that, but as soon as she would start nursing she would fall asleep. I tried undressing her, rubbing a cool washcloth on her face - all to no avail. She would start nursing and fall back to sleep.
It was very frustrating...newborns are
supposed to be hungry and eat every few hours around the clock, and she just didn't seem very interested.
The other problem was how to tell when she was done nursing. Everyone said "you'll just know" - she'll pull away or turn her head or whatever. Kayla rarely did this either. She would nurse until she fell asleep. So I tried putting her on a schedule - every 3 hrs and 15 min on each side. I don't know if that was the right thing to do or not, but I didn't know what else to do.
Maj S observed her nursing during one of her appointments and said everything seemed to be going fine, that Kayla seemed to be nursing correctly - had a good latch, was sucking and swallowing, but still I worried.
I worried because she was very slow to gain weight. We would go in for monthly weight checks and she was always so far down on the bottom of the chart.
I went in for her 5 month weight-check and the scale showed the exact same weight she was at her 4-month weight-check. I gasped and mentioned that to the tech. She weighed her again. Same weight. I think she saw the look of alarm on my face and the tears forming in my eyes because she went to get Maj S. I didn't have an appt - this was just a weight check, but Maj S took the time to come talk to me and calm my nerves. I felt horrible. I felt like an awful mom. How could my baby not gain
one single ounce in a whole month? How was that even possible? What was I doing wrong?
Maj S reassured me that Kayla looked healthy and didn't appear like she needed hospitalization. She watched her in the car seat kicking her legs etc and asked me "is she always that active?" I said "yes" and she replied, "maybe she's burning off the calories faster than you can keep them in her!" She suggested to offer her an additional ounce or two of bre*st milk in a bottle after nursing to see if she was still hungry.
We tried that and sometimes she would take it, other times not. She was just bound to be a very small child! We didn't even turn around her car seat until she was almost 2 years old because that is when she finally reached 20 lbs. She's only 30 lbs now - 30! For a four-year old! So that was quite a challenge for me.
What I'm facing now? Kayla's still a very active child! She can't sit still; I think it's physically impossible for her to be still! Even sitting in a chair while eating her legs are constantly in motion. I seriously think she might have ADHD. She's just so easily distracted too.
What were some of your challenges?