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Tuesday, June 12, 2018

Snow Much Fun

Yes it is summer here in SC - this post is 5 months late! I thought I posted about the snow we got that extended the kids' winter break, but it was sitting in my drafts all this time.

So, yeah, snow. It's a rare event here in the Lowcountry, so we had to take advantage and have all the fun we could while it lasted. The day before the snow hit the forecast for our area was less than an inch so I figured all we might see were some flurries.

Turns out those flurries accumulated to 6-8 inches in some areas! So we got out for snowball fighting, snow angels making, snow tasting, attempted sledding, snowman building, and walking around our block.







The only 'sled' we had - a boogie board!

How thick the ice was on our driveway



My Lowcountry snowman's nose, mouth, and buttons were made with seashells. The eyes were actually made with some kind of coal Lucas had from some school project!

 Pure joy on his face at finally getting to experience snow (he doesn't really remember the snow when we lived in Maryland since he was only 1 and 2 years old.

The pond froze over

The entrance to the drainage pipe was the only place that wasn't frozen

Smashing snowballs on the frozen pond



Almost 5.5 inches in our driveway

Taking a walk around our neighborhood to see everything covered in white - it'll probably be another 10 years before this happens again!




Monday, March 19, 2018

Lucas' Second 10K

Lucas is running in the Cooper River Bridge 10K for the second time. He wants to beat his time from last year and finish in under 50 minutes.

He also wants to continue raising money for LuMind RDS and support Down syndrome research.

Last year he raised almost $700 so this year his goal is to hit $800.

All donations will be matched 3:1 (!!!) through March 21 - World Down Syndrome Day. A $25 donation will turn in to $100 donation.

Will you please consider supporting Lucas with a donation? He will be so appreciative!

Thank you!


Cooper River Bridge Run 10K on Crowdrise

Thursday, March 01, 2018

Her Face = Priceless

Last Friday, yes on Lucas' birthday, Kayla had a regional archery tournament in Columbia, SC.

Kayla's highest score was the 151 she got in Worlds last summer in Orlando. So far this season she hasn't been close to that score. Her best has been a 103.

I don't know what it was for this tournament, but she was on fire! She shot her best score yet - blowing away her 151. She came away from Regionals with a 165! She did so great with her shots; it was exciting to watch her.

After one particular round she was especially pleased with herself. She was excited to end that round with a 9 (she might have thought it was a 10; sometimes it's hard to tell until they go to the target to score their round) but we're all really excited for her when she gets that arrow in yellow!

Anyway, she was pumped coming back from the line and threw in a fist pump to herself. I'm so glad I caught this picture of her. Pure joy. Pure excitement. Elation. Self-confidence. Pride.

That's her coach behind her - just as happy for her as she was ... her excitement can get contagious!

Look at her face!

This was her "yes!" before the above picture, but of course someone waked right in front of me as I was taking the picture!




 Her coach is the best! He's so great with all the kids. 


Friday, February 23, 2018

Double Digit Birthday

Ten. Lucas is ten. How is it even possible that a decade has passed since I gave birth to this sweet boy of mine?

But it's true. I blinked and he's ten years old today.


Our annual birthday pancake tradition at IHOP

He still enjoys all the same things he has for the past several years: reading, Harry Potter, Minecraft, soccer, and chess.


(First place in a tournament a couple of weeks ago!) 

He's still my little boy with a heart of gold. He's still caring, empathetic, self-less, friendly, social, and sometimes still wise beyond his years. We still contribute to the "donation jar" that he started a couple years ago. Regularly donating what's been collected and starting over.

A couple months ago he ran in a 5K to begin his training for the Cooper River Bridge again. He ran this race last year (finished 3rd in his age group) and has a goal to beat his time and finish in under 50 min.

He's also, again, running for a purpose. He's raising money for LuMind RDS Foundation, as he did last year. If you'd like to make a donation and help him reach his goal I know he will be so thankful.

I can't wait to see where he'll go and what he'll accomplish in the future; but I'm also in no hurry for him to grow up. Time, slow down a little.

Happy 10th birthday Lucas!
"I love you more!"

Wednesday, February 21, 2018

Christmas in Helen, GA

We spent Christmas (I know, it was 2 months ago already) in Helen, Ga. It's a quaint little Bavarian-themed town in the mountains. We were hoping for snow, but that didn't happen (at least not until later).

We had a fun week away exploring a new-to-us area.




Night-time mini golf with Christmas lights/decorations all around

We did some geocaching in the surrounding area




Had to visit Babyland, home of the Cabbage Patch Kids!

And Kayla used some Christmas money to adopt her very own Cabbage Patch Kid. 

Sharing a Bavarian pretzel

A nice hike to the twin Anna Ruby Falls





Thursday, December 14, 2017

Love You Forever

During my grandmother's funeral Mass one of my uncles read the children's book "Love You Forever" by Robert Munsch.

I don't think there was a dry eye in church as he read through the familiar images of a mother rocking her baby and singing

"I'll love you forever, 
I'll like you for always, 
as long as I'm living, 
my baby you'll be"

through her child's life. And of course as the story goes the one night she doesn't go to her son's house he goes to her house and returns the sentiment to her ... and then starts the tradition anew with his own newborn child.

After the service we gathered for a luncheon and that's where my own version of rocking my baby played out.

Lucas wasn't feeling well - lingering headache from a possible migraine the day before or sinus issues from flying and/or allergies from pollen in a different state affecting him - and I could see the energy drain out of him.

He tried to curl up on that cold, hard, metal chair and let his eyes and his head rest, but I knew he couldn't be comfortable like that.

I've told him before that he's too big to fit in my lap anymore even as he insists he isn't. I tell him there isn't any room for those legs and arms to go when I hold him.

But I also know that the time will come, too soon, when he won't want to sit in my lap, or be held in my arms, and so I relish those moments when they happen.

So I took him in my lap, even though he's all arms and legs now, and let his legs dangle off the sides of mine, and I tried to make him as comfortable as I could while he slept it off.

As I held him I thought of the book my uncle read. I looked down at this face, growing up when I'm not looking, and thought of the verse that parents everywhere have repeated to their kids, thanks to Robert Munsch, and how true the words are:

"I'll love you forever,
I'll like you for always,
as long as I'm living,
my baby you'll be"


Wednesday, November 29, 2017

Honor Roll!

Kayla made the Honor Roll!

Academics do not come easily for her, at all, so this was definitely hard-earned. I was not able to be at the ceremony but I heard she was just beaming and so proud when her name was called.

Requirement is 86 and above and she had a couple 85/84 last year so she was soooo close! So proud of her during this first quarter marking period!

Thursday, November 09, 2017

Chess Accomplishments

As I mentioned in this post, Lucas is really enjoying the game of chess and becoming quite a decent player (if I do say so myself!).

A few weeks ago the library chess club had a small tournament among their members and he came in third.

A few weeks after that he participated in the Charleston Fall 2017 Chess Scholastic tournament that was an official US Chess event. There were 21 players in his ratings bracket.

This kid took 2nd place! So proud of him!

There is another tournament this weekend that I wish he could participate in, but he has a soccer game (and he missed a game the weekend he participated in the chess tournament); the joys - or conflicts - of having interests that overlap!


Tuesday, October 31, 2017

Monday, October 30, 2017

Human Trisome Project

The Human Trisome Project is a ground-breaking research initiative into Down syndrome and researching the medical complexities that can accompany having an extra 21st chromosome.

I first heard about the vision for this project at a Global Down Syndrome Foundation medical round table discussion at the NDSC Convention a couple years ago - exciting to see it's up and running now!

The mission of this project is to "...significantly advance our understanding of several major medical conditions and human biology in general, enabling the developmental of novel diagnostic and therapeutic tools to serve not only individuals with Down syndrome, but also the billions worldwide who experience conditions affected by trisomy 21."

This research will be the larges and most comprehensive of its kind helping to answer the questions of why people with Down syndrome are predisposed to diseases like Alzheimer but seem to be protected from some kinds of cancer.

They are currently enrolling anyone between the ages of 6 months to 89 years.

They are enrolling:
- people with Down syndrome
- people who have a family member with Down syndrome
- healthy people who don't have Down syndrome

Basically anybody and everybody can participate in this important research project.

Click here for more information and click here to get involved.