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Thursday, March 26, 2009

Biopsy Update

Thank you all so much for your prayers for Kayla's upper endoscopy/biopsy. Everything went very well and Kayla did great. They even took her back while unmedicated - that's a big thing for her to go willingly with the nurses, and without me! I could tell she was a little anxious and hesitant at first, but my girl is growing up and doesn't quite "need" me around as much anymore! I think it helped that she had her Daddy Doll with her!



It took her a while to wake up, she was really knocked out! But she woke up with no problems and was in a pretty happy mood, thank goodness! I wish she was always that pleasant and agreeable! She downed 2 popsicles with no problems so we were released to go back up to the 6th floor for short stay recovery. Once there she drank a juice box, (I didn't offer her the wheat crackers, thankyouverymuch!) went to the bathroom, and we were released to go home.

A quick review with the GI dr on what he saw - he did see a small area that was flattened which I guess was really to be expected with the results of her blood work. Of course the dr still has to call me when the biopsies are completed and reviewed, but I'm not expecting anything different; we're sticking with the presumed diagnosis of Celiac's Disease.

Everything else looked good on the scope though; except her tonsils. He told me they were huge. Kayla was followed by the same ENT in NM for 5 yrs and I asked him more than once about her tonsils; he always told me they were fine. She's never had a sleep study done, so I'm thinking I need to schedule that now. It's possible she'll need surgery to remove them; hopefully not though.

Thanks again for the prayers and for thinking of us. Thanks for the encouragement of this new dietary lifestyle and for the links to websites/blogs!

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43 comments:

Karen said...

I'm glad she came through the procedure so well. I hear that huge tonsils are par for the course with DS kids, and was told that if they're not giving any problems to just let them alone. But definitely check with an ENT.

Mom24 said...

I'm so glad she came through everything well. Sorry it wasn't a clear not celiacs procedure. Good luck with the new lifestyle.

Wheat crackers? Seriously, you'd think they could read a chart and offer something gluten free.

The Munck Family said...

YAY! happy she did so well. Praying that the you get the answers soon, and the lifestyle adjustment is easy.

Lianna said...

I agree about the wheat crackers!

Michelle, I send along our heartfelt wishes for Kayla to be well. I am tardy in my reading, but wanted to post my well wishes.

I think Kayla was a brave little girl, not unlike her father, and she did extremely well! Good for her!!!

There are many gluten-free products out there now. I believe that there is more and more research being done by our government, and I suspect in the US too.

Lianna said...

I agree about the wheat crackers!

Michelle, I send along our heartfelt wishes for Kayla to be well. I am tardy in my reading, but wanted to post my well wishes.

I think Kayla was a brave little girl, not unlike her father, and she did extremely well! Good for her!!!

There are many gluten-free products out there now. I believe that there is more and more research being done by our government, and I suspect in the US too.

Bailey's Leaf said...

It seems like a horrible change at first, but truly is a do-able thing. There are ways to work around all kinds of things with the Celiac. (Remember, traditional spices have wheat as an anti-stick agent.) A lot of label reading is in your future, but soon enough it will be like second nature to you.

Tonsils? Oh, ugh. I'm sorry.

Glad she came through the procedure well, though!

Ellen said...

So happy to read that Kayla did well. Just love the daddy doll.

Lacey said...

Glad everything went well, and there were no surprises. Jax pulmonologist said she has never seen a downs kid without some form of sleep apnea,even if it is mild.

mommaof4wife2r said...

daddy doll. soooo cute! and she's precious. glad it went well...grab the ENT and see what's next! prayers.

nichole said...

I'm so glad things went well with the procedure. Hopefully you get the results about celiac soon.

Karly said...

So glad Kayla did so well! What a champ.

Mara said...

Glad to hear it went well. And I love the daddy doll. What a cute pic !

Tina said...

Glad to hear everything went well! I'll be thinking and praying for you guys. LOVE the Daddy doll, BTW. That's really cool :)

Tricia said...

so glad it went well. been thinking of you guys!

Sandra said...

I just love the Daddy doll :)

I'm so glad everything went well, she's such a big girl. Give her hugs from us.

Chrystal said...

I'm glad to hear that all went well. She looks so cute in that photo, BTW.

much more than a mom said...

I'm glad to hear it went so well. Here's hoping for a good result!

Tara said...

I'm so glad she did okay. What a relief. Hoping for some answers and the adjustment goes ok for Kayla. Love her to pieces!!

The Girls' Mommy said...

We've been thinking about you!

Michelle said...

Been thinking of you and Kayla. I hope you get the results soon. Glad to hear she did well during the procedure.

chelle said...

Glad the procedure went well. Sending positive vibes for the results :)

Nancy said...

I'm glad she handled the procedure so well. She's a trooper. I hope you get good results back quickly.

You sure have so much on your plate with your hubby being deployed so I wanted to offer you HUGS.

Anonymous said...

So happy that everything went smoothly for Kayla. Cant get over them giving her wheat crackers..go figure!

Good luck adjusting to the new lifestyle. Man, that would really be hard for Carly.

Joany

ChupieandJ'smama said...

Glad all went well! I'm sorry that she will now be gluten free. Making your own breads/cookies/crackers will be cheaper in the long run. We do a mix: some homemade and some store bought. It takes some getting used to, but it's doable and not as hard as it seems.
I'm also going gluten free today so now half of our house is gluten free. Jason has been gluten free for 4 years now so it's really nothing new for me. If you have any questions, please e-mail me. There are so many great recipe blogs too that you will be able to make just about anything.
Is there a Celiac support group in your area? They will be able to help you too. Don't forget that gluten hides in school supplies, play dough, medicines, personal care products and vitamins too.

Christina said...

I'm glad she did so well with the procedure, what a brave girl! I can't believe they gave you wheat crackers, I totally would have said something!!

Leslie said...

Your family is in my prayers!!!
Leslie
LeslieVeg@msn.com
http://leslielovesveggies.blogspot.com/

Tiff said...

So Glad she did so well. I am in the same boat. But I'm allergic to wheat and my son needs to be on a gluten/Casein free diet. A lot to learn. It can be overwhelming.

Hang in there. The more coupons you use for other non food items will allow you more money to spend on the food Kayla needs.

Michelle said...

Me too - so very glad it went well! Hugs!!!!!

Laura Grossman said...

http://seasidescarves.blogspot.com/

Linda said...

Brave girl! Loved the part about the Daddy doll. How sweet. Good luck with your new lifestyle!

One thing that struck me was the part about the tonsils. Would you mind e-mailing me the name of your ENT? It's interesting that nothing has been said before about the tonsils. Maybe the ENT didn't think it was an issue? Just curious- we are about to see an ENT next week about my daughter's tonsils- and since we live in the same area it's a possibility that it might be the same person. Sorry about the long comment- my e-mail address is lindanargi1@yahoo.com.

Anonymous said...

i'm sure kayla would LOVE to have her tonsils removed...considering she is always saying "ICECREAM" like it's one of the major food groups. ^_~
I'm glad she's doing well and hopefully you'll still be able to find yummy foods that don't have gluten in them.
<3 Kel

Theresa said...

I haven't been by in a little while. Have you visited us? We are trying to go wheat free too! LOL.

Thinking of you.

Love Theresa

Tracey said...

Glad to hear all went well. I will keep you guys in my prayers...

Khordaddy said...

What a precious little girl! That was so brave of her to go back alone, and witout any medication!

Good luck with the new diet. I know a little something about that, as I had to be on a high fiber diet for awhile.

Thanks for stopping by my blog!

PEA said...

Hello dear Michelle:-)

Just caught up with your latest news and first of all, I'm so glad that Kayla did well going through the procedure, she certainly is growing up! Hopefully you will get the answers you're looking for soon. If she is diagnosed as having Celiac's Disease, then yes, it will be a bit of a lifestyle change where food is concerned but as Janeen says, it's doable:-)

Both my boys had their tonsils removed when they were 3 years old, as well as their adenoids. They were sore for a few days but it never takes kids long to get back up on their feet:-) Sending you all big hugs across the miles. xoxo

Kathleen Marie said...

I am so happy that everything went well. Alexys had her tonsils and Adnoids out the first of the month. Her snoring stopped right away... Hers were huge also but what a difference it made. I hope your little one doesn't need hers out but if she does, it will go smoothly. Alexys took 10 min to remove and she was talking an hour later... Amazing!

Nancy M. said...

I am so happy to hear that everything went well for Kayla. She does sound like she's growing up! I love the Daddy doll!

Overwhelmed! said...

Michelle, I'm glad that Kayla made it through the procedure so well. I'm praying for her, okay?!

McKinney said...

Kayla is amazing! Just curious..did she ever show any signs along the way (looking back) that might have given you a clue that she might have issues or was this just discovered in routine testing? I have a 5 year old daughter with DS that one testing came back questionable, but in the end they said she was fine.

Kim said...

What a trooper! Praying that things will get better soon.

Izzy 'N Emmy said...

I am so proud of her for doing so well! It's good to see it went well and you will have a better understanding of the diagnosis soon. Switching the diet is going to be tricky but I am sure there are lots of readers who could help.

Bonita said...

I'm catching up on my blog reading and didn't realize all of this was going on with Kayla. I just happened to run across a site the other day that was about eating gluten-free on a budget. Check out: http://www.frugalabundance.com/ .

You guys are in my prayers.

Anonymous said...

I'm glad everything went fine with the procdure. i have huge tonsils too. when i went to my new doctor they were shocked how huge. also shocked that i didn't have amny sore throats growing up. Huge tonsils runs in the family.My mom has them and never needed anything down about it. som maybe things will be okay with that.