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Monday, September 28, 2009

The Waiting Game

When my dad went in last Friday for an endoscopic biopsy on his pancreas and the results came back pretty much cancerous, I thought things would happen fairly quickly from there.

Or at least I hoped they would. Ok they found something, let's do something about it!

I didn't realize all the other tests for this and that and waiting for results and doctor's consultations would seem to take so long.

This past Tues he had the cat scan to see if it had spread to the blood vessels. Wed was his appt with the doctor to go over the results of the biopsy and the cat scan.

The results from that appt are that he has adenocarcinoma, which 85% of pancreatic cancers are, it didn't spread to the blood vessels, but there are spots that showed up on his liver. If the spots turn out to be cancerous too he won't be able to have the Whipple procedure. If they are just cysts they can do the procedure ... but either way we won't talk about statistics. I'm in denial about that right now.

So this week he has more blood tests to do on Mon. A pet scan of his liver on Tues. A possible MRI of his liver depending on the results of the pet scan ... and who knows when the blood tests and pet scan results will be back, but that will mean making another dr appt. Fri he has an appt with a different doctor at H. Lee Moffitt Cancer Center for a second opinion on everything.

I can understand why he needs the different tests to make sure they get the diagnosis right and to know which path to take for treatment, but it just seems like so much waiting around for this and that. I hate waiting cause it feels like nothing is getting done, irrational as that may seem.

My dad lives in Fl and I just wish I lived closer, but my brother will be there with him in Oct so that makes me feel somewhat better.

Thank you for your continued prayers.

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30 comments:

mommaof4wife2r said...

oh michelle...i am so sorry. it take soooo long to make the diagnosis and it doesn't make sense to me either, but i suppose there's a reason. who konws. prayers for you!!!

Mom24 said...

Waiting in this case is definitely not a good feeling.

I'm hoping the tests show cysts and nothing more. Praying for all of you.

Molly said...

oh hon, I am praying for you and him! That stinks. HUGS!

Nisa said...

Still praying here!
love you!

Karen said...

Michelle, we'll keep him and the family in our prayers. I'm sorry.

Cate said...

waiting is so hard. all my best thoughts and prayers, to you and your dad.

chelle said...

Big Hugs! I can only imagine how you must feel right now.

Anne and Whitney: Up, Down and All Around said...

i am so so sorry! i am happy to hear he is getting a second opinion, but all of the waiting and tests are just torture! i have close family friends who have gone to MD Anderson in Houston for second opinions and followed their treatment plan with success. There is also some special radiation that can pinpoint very small areas that I currently know 2 people going to Bloomington, IN for this special treatment tha is one of only 5 places that do this in the country. here is the link, if you want to check it out:

http://www.mpri.org/

thinking of you and your dad! sending positive vibes your way + prayers too!!!

Corey~living and loving said...

Thinking of you! Hugs!

Noel said...

I am so sorry Michelle. I hope that your family gets some answers and a direction soon, the not knowing what to do is hard. Sending prayers your way.

Jenn said...

I'll be thinking of you !

Beth said...

Cancer sucks! I am so sorry you are going through this. I will be praying for your dad and your family....

Living Life Happy said...

Waiting truly sucks. Praying that they will be done soon so they can start his treatment. Praying for your whole family.

Ellen said...

Thinking about you and your whole family.

Becca said...

Michelle, I'm so sorry to hear about that. I'll be thinking of you guys, and hoping for the best.

Anonymous said...

It is so hard to be patient with the medical system - I've been there when dealing with my folks medical situations. It seems like progress just stands still at times and can be SO FRUSTRATING. So many tests and other opinions. You will need to be diligent in staying on top of things as the system can not always be trusted to do what is promised in the time frame promised. Keep involved and informed and be pro-active. My prayers are with you Michelle.

ChupieandJ'smama said...

I know this is tough for all of you. Waiting is never easy. Praying for you and sending good thoughts and hugs.

Nancy M. said...

I'm sorry, I know the waiting has got to be hard on everyone! I will keep your dad and your family in my prayers!

much more than a mom said...

Oh Michelle, you know I've been there and it sucks, no doubt. You'll all be in my prayers.

Renee said...

My heart goes out to all of you; keeping you all in my thoughts and prayers.

Bailey's Leaf said...

Thank you for the update. Yes, frustrating indeed, but they are testing him so much to make certain that they treat him in the appropriate ways.

Still with the waiting.

Prayers to him, you and your family. Not an easy diagnosis and all you want to see is someone doing something in a positive direction to help!

Hugs to you.

Ladyblog said...

Praying for your dad! We live near Moffit....it's a great place with lots of research and caring doctors. If you ever need to come to FL you are welcome here!

Jeanette said...

So sorry to hear Michelle. He is in our prayers!

A Captured Reflection said...

Oh that's a lot to think about, and I didn't realise he was in Fl. Will keep praying. I do love your new header it's stunning, so beautiful

At My Own Pace said...

I'm so sorry to hear! I hope you get some answers soon!

Trace

starrlife said...

I appreciate you taking the time to keep us updated- we(I) think of you often and send you and your lovely family all of the positive thoughts I can muster up! It's hard to wait for an answer isn't it? Hugs.

mommasmurf said...

thank you for the update. will continue to pray!

Anonymous said...

My prayers are with your Dad and your family.I hope the results for the test show cysts. Love ya,
mimi

Overwhelmed! said...

Oh Michelle, I'm so sorry to hear this news of your father. You most certainly have my prayers for him and your entire family!

Robin said...

Hi Michelle- It has been so long. I am catching up on your blog. So sorry to hear about your dad. He will be in my prayers. The kids look great! Getting so big! Take care!