Lucas is running in the Cooper River Bridge 10K for the second time. He wants to beat his time from last year and finish in under 50 minutes.
He also wants to continue raising money for LuMind RDS and support Down syndrome research.
Last year he raised almost $700 so this year his goal is to hit $800.
All donations will be matched 3:1 (!!!) through March 21 - World Down Syndrome Day. A $25 donation will turn in to $100 donation.
Will you please consider supporting Lucas with a donation? He will be so appreciative!
Thank you!
Cooper River Bridge Run 10K on Crowdrise
Showing posts with label Research DS. Show all posts
Showing posts with label Research DS. Show all posts
Monday, March 19, 2018
Saturday, October 29, 2016
Survey on Opinions on Medical Research for Down Syndrome
Researchers at the Mayo Clinic are conducting a survey to learn about what parents and individuals with Down syndrome think about medical research advancements and priorities for Down syndrome.
The information gathered in this study could possibly be used to advocate for the needs of the Down syndrome community in further medical research.
Research into Down syndrome can affect more than just the Down syndrome population - important research is being done on Down syndrome and Alzheimer's which could have implications on the general population of Alzheimer's patients. There are also studies on Down syndrome and cancer; while individuals with Down syndrome have a higher incidence of getting leukemia they also have a higher survival rate - and they have a lower incidence of getting some other types of cancer.
For more information on the latest in the field of research and Down syndrome see LuMind and GDSF websites.
To take the Opinions on Medical Research survey if you are a parent of a child with Down syndrome age 12 and over click here; if you are a person with Down syndrome age 12 and over click here.
(The survey asks for opinions on medical interventions and medicines that do not exist and have not yet been developed.)
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The information gathered in this study could possibly be used to advocate for the needs of the Down syndrome community in further medical research.
Research into Down syndrome can affect more than just the Down syndrome population - important research is being done on Down syndrome and Alzheimer's which could have implications on the general population of Alzheimer's patients. There are also studies on Down syndrome and cancer; while individuals with Down syndrome have a higher incidence of getting leukemia they also have a higher survival rate - and they have a lower incidence of getting some other types of cancer.
For more information on the latest in the field of research and Down syndrome see LuMind and GDSF websites.
To take the Opinions on Medical Research survey if you are a parent of a child with Down syndrome age 12 and over click here; if you are a person with Down syndrome age 12 and over click here.
(The survey asks for opinions on medical interventions and medicines that do not exist and have not yet been developed.)
Grab This Button
Monday, March 21, 2016
WDSD: My Friends My Community
Today is World Down Syndrome Day: Mar 21, also written as 3/21, chosen because people with Down syndrome have 3 copies of the 21st chromosome. Trisomy 21 in medical terms.
The theme, or Call To Action, from Down Syndrome International for this year's WDSD is #MyFriendsMyCommunity: The benefits of inclusive environments for today's children and tomorrow's adults. They ask that you show the world "how persons with Down syndrome live and participate in the community alongside family, friends, peers and the public."
The more that today's children with Down syndrome are fully included in their schools and communities, the more acceptance they will have from their peers when they reach adulthood. The more inclusive settings now ... the more commonplace it will be for their future.
One of the ways individuals with Down syndrome are participating in their communities and with their peers are through higher education programs at colleges and universities across the states. Check out Think College for a list of participating programs in your state.
Students in these programs are taking some academic courses along with their peers, continuing to improve on independent life skills, and gain employment skills; along with this experience comes a full college tuition as well.
Think College provides a great list of resources for how to pay for college. One of those ways includes scholarships; there are several organizations devoted to giving scholarships to students with Down syndrome such as Ruby's Rainbow.
Ruby's Rainbow awards scholarships up to $3000 per selected student. Their 321 Pledge is simple: donate $21, pledge to be kind and considerate to all people, and ask 3 people to do the same. Will 3 people join me in donating $21 to this fantastic scholarship opportunity for people with Down syndrome?
Don't forget to also leave a comment on my 10 years of blogging post (even if the comment is just saying "Happy WDSD!") For every comment I'm donating $1 to LuMind Research Down Syndrome where donations are matched 3:1 for WDSD.
The theme, or Call To Action, from Down Syndrome International for this year's WDSD is #MyFriendsMyCommunity: The benefits of inclusive environments for today's children and tomorrow's adults. They ask that you show the world "how persons with Down syndrome live and participate in the community alongside family, friends, peers and the public."
The more that today's children with Down syndrome are fully included in their schools and communities, the more acceptance they will have from their peers when they reach adulthood. The more inclusive settings now ... the more commonplace it will be for their future.
One of the ways individuals with Down syndrome are participating in their communities and with their peers are through higher education programs at colleges and universities across the states. Check out Think College for a list of participating programs in your state.
Students in these programs are taking some academic courses along with their peers, continuing to improve on independent life skills, and gain employment skills; along with this experience comes a full college tuition as well.
Think College provides a great list of resources for how to pay for college. One of those ways includes scholarships; there are several organizations devoted to giving scholarships to students with Down syndrome such as Ruby's Rainbow.
Ruby's Rainbow awards scholarships up to $3000 per selected student. Their 321 Pledge is simple: donate $21, pledge to be kind and considerate to all people, and ask 3 people to do the same. Will 3 people join me in donating $21 to this fantastic scholarship opportunity for people with Down syndrome?
Don't forget to also leave a comment on my 10 years of blogging post (even if the comment is just saying "Happy WDSD!") For every comment I'm donating $1 to LuMind Research Down Syndrome where donations are matched 3:1 for WDSD.
Thursday, October 22, 2015
R is for Running, Racing, and Research
Joe is the runner in this family. He ran his first marathon in 2012 and this Sunday he will run in his second Marine Corps Marathon, and fifth overall (plus a half thrown in there).
Last year we went to DC to cheer him on and it was a fun time for the kids cheering for everyone and then seeing Joe running towards us.
Since he started running he's been representing Research Down Syndrome Runners raising money for Down syndrome cognition research. RDS recently merged with LuMind which became the LuMind RDS Foundation. They both had the same mission and end goal of raising money for cognition research and they used the same scientific advisory board; now resources can be pooled for one streamlined organization with the runner's program staying active.
If you'd like to support Joe's race this Sunday, and, ultimately support Kayla and all individuals with Down syndrome, please consider a donation to his fundraising page for the Marine Corps Marathon. Every donation is appreciated.
Down syndrome is one of the most common genetic conditions, yet the least funded. LuMind is doing great things in the field of Down syndrome cognition research with providing grants (10.4 million since 2004) for research and we'd like to support this effort in any way that we can.
We had an opportunity to support LuMind RDS in a fun way this past summer - we participated in the 2nd annual Race for Research. This was a 3 day road rally/scavenger hunt through SC/NC with a NASCAR-related theme. One of the highlights of the trip this year was getting a ride in the pace truck for a couple of laps at Darlington Raceway.
Fundraising Websites - Crowdrise
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Last year we went to DC to cheer him on and it was a fun time for the kids cheering for everyone and then seeing Joe running towards us.
Since he started running he's been representing Research Down Syndrome Runners raising money for Down syndrome cognition research. RDS recently merged with LuMind which became the LuMind RDS Foundation. They both had the same mission and end goal of raising money for cognition research and they used the same scientific advisory board; now resources can be pooled for one streamlined organization with the runner's program staying active.
If you'd like to support Joe's race this Sunday, and, ultimately support Kayla and all individuals with Down syndrome, please consider a donation to his fundraising page for the Marine Corps Marathon. Every donation is appreciated.
Down syndrome is one of the most common genetic conditions, yet the least funded. LuMind is doing great things in the field of Down syndrome cognition research with providing grants (10.4 million since 2004) for research and we'd like to support this effort in any way that we can.
We had an opportunity to support LuMind RDS in a fun way this past summer - we participated in the 2nd annual Race for Research. This was a 3 day road rally/scavenger hunt through SC/NC with a NASCAR-related theme. One of the highlights of the trip this year was getting a ride in the pace truck for a couple of laps at Darlington Raceway.
Met NASCAR legend and Hall of Fame-r Cale Yarborough
Running across finish line at Charlotte Motor Speedway
Met current NASCAR driver Austin Dillon
Another legend and International Motorsports HOF-er Humpy Wheeler (also the voice of Tex in the movie CARS) signed Lucas' forehead, and the dollar he gave him for knowing the general area of where Maine is!
Fundraising Websites - Crowdrise
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Monday, March 16, 2015
A Blogging Anniversary
This is my ninth year of blogging and while there are times I think it's time to hang it up, today isn't the day.
Today I will keep up with a tradition I started a couple of years ago on my 'blogiversary' - donating $1 for every comment on this post to an organization centered on Down syndrome cognition research.
LuMind Foundation and Research Down Syndrome recently merged to become LuMind Research Down Syndrome Foundation. This is exciting news since they both shared the same mission of Down syndrome cognition research and used the same scientific advisory board. Now resources can be combined for greater power in focusing on cognition and Alzheimer research. My family has supported both organizations with Joe raising money for the RDS Runners program - which will carryover to the merged organization - I'm excited to see them become one organization.
As in years past, for World Down Syndrome Day (Mar 21st), all donations to LuMind RDS Foundation will be matched 3:1.
Please join me in celebrating not only my blog's anniversary, but celebrating Kayla on World Down Syndrome Day, by leaving a comment on this post.
Thank you for following along with our family's journey.
Today I will keep up with a tradition I started a couple of years ago on my 'blogiversary' - donating $1 for every comment on this post to an organization centered on Down syndrome cognition research.
LuMind Foundation and Research Down Syndrome recently merged to become LuMind Research Down Syndrome Foundation. This is exciting news since they both shared the same mission of Down syndrome cognition research and used the same scientific advisory board. Now resources can be combined for greater power in focusing on cognition and Alzheimer research. My family has supported both organizations with Joe raising money for the RDS Runners program - which will carryover to the merged organization - I'm excited to see them become one organization.
As in years past, for World Down Syndrome Day (Mar 21st), all donations to LuMind RDS Foundation will be matched 3:1.
Please join me in celebrating not only my blog's anniversary, but celebrating Kayla on World Down Syndrome Day, by leaving a comment on this post.
Thank you for following along with our family's journey.
Monday, December 01, 2014
Giving Tuesday
The Tuesday after Cyber Monday, which follows Small Business Saturday, which follows Black Friday, which follows Turkey Day ... has come to be known as Giving Tuesday.
Giving Tuesday is a day dedicated to giving back. Giving back to others, giving back to your community, and giving back to charities and organizations that are doing good to helping others. Giving back can be donations or volunteering your time.
Here are a few organizations that we believe strongly in for their work and support in Down syndrome cognition research, LuMind Foundation, Research Down Syndrome, and the Jerome Lejeune Foundation USA.
A generous donor as pledged to match 1:1 for gifts of $1000 to LuMind, but of course any amount is appreciated. Donations can be made here. LuMind has put together this list of 10 reasons to support LuMind and cognition research with a donation.
The past few years Joe has combined his participation in marathons with raising money for RDS Runners. Donations to Research Down Syndrome can be made here.
Joe's recent completion of the Marine Corps Marathon:
Dr Jerome Lejeune is the geneticist who discovered that the medical reason for Down syndrome is 3 copies of the 21st chromosome. The original Foundation, based in Paris, was founded to carry on Dr Lejeune's work. The main focus is on research, care, and advocacy for people with Down syndrome, but they also fund research into other genetic intellectual disabilities such as Fragile X, Cri du Chat, and Rhett's syndrome.
Since it's founding the Jerome Lejeune Foundation has supported researchers in the U.S. and after being engaged with the research community here, the Board voted to establish the Jerome Lejeune Foundation USA with the same mission as the one in Paris: "...serves those with Down syndrome and other genetic intellectual disabilities in a spirit of profound respect for their inherent human dignity, and that of all human persons." Donations can be made here.
What are some organizations that you are supporting during #GivingTuesday?
Giving Tuesday is a day dedicated to giving back. Giving back to others, giving back to your community, and giving back to charities and organizations that are doing good to helping others. Giving back can be donations or volunteering your time.
Here are a few organizations that we believe strongly in for their work and support in Down syndrome cognition research, LuMind Foundation, Research Down Syndrome, and the Jerome Lejeune Foundation USA.
A generous donor as pledged to match 1:1 for gifts of $1000 to LuMind, but of course any amount is appreciated. Donations can be made here. LuMind has put together this list of 10 reasons to support LuMind and cognition research with a donation.
The past few years Joe has combined his participation in marathons with raising money for RDS Runners. Donations to Research Down Syndrome can be made here.
Joe's recent completion of the Marine Corps Marathon:
Dr Jerome Lejeune is the geneticist who discovered that the medical reason for Down syndrome is 3 copies of the 21st chromosome. The original Foundation, based in Paris, was founded to carry on Dr Lejeune's work. The main focus is on research, care, and advocacy for people with Down syndrome, but they also fund research into other genetic intellectual disabilities such as Fragile X, Cri du Chat, and Rhett's syndrome.
Since it's founding the Jerome Lejeune Foundation has supported researchers in the U.S. and after being engaged with the research community here, the Board voted to establish the Jerome Lejeune Foundation USA with the same mission as the one in Paris: "...serves those with Down syndrome and other genetic intellectual disabilities in a spirit of profound respect for their inherent human dignity, and that of all human persons." Donations can be made here.
What are some organizations that you are supporting during #GivingTuesday?
Monday, October 20, 2014
Why Research On Down Syndrome?
Years ago it was thought that individuals with Down syndrome weren't capable of, well, just about anything, so it was standard practice to immediately institutionalize babies born with Down syndrome.
I've said it before, and I'll say it again, you put any baby in an institution without stimulation, love, opportunities to grow and learn ... of course they won't learn anything!
Along with the institutionalization there was the attitude that there was no reason to do research that would help with a better quality of life.
Things have changed and thanks to research more is understood about Down syndrome. Despite the fact that Down syndrome remains the most common chromosomal disorder but the least funded by the NIH, research is being done by a number of organizations who realize the importance of research and Down syndrome.
They are discovering that by researching the genes and secrets that are held on that 21st chromosome they can also research medical mysteries beyond Down syndrome - issues like Alzheimer's and cancer.
Even as recently as 5 years ago I blogged about individuals with Down syndrome having a higher chance of being diagnosed with leukemia, but also a higher chance of beating cancer.
Does Study Of Down Syndrome Hold A Possible Cancer Cure? is a more recent article bringing light to the need for research on the 21st chromosome and the positive impact it can have on a larger part of society. "Therefore, our friends and relatives with Down syndrome are, even if unintentionally, enabling discoveries about how cancers develop and how to combat them."
Exactly. Research is important and it's why we support the work that organizations like LuMind Foundation, Research Down Syndrome, Global Down Syndrome Foundation, just to name a few, are doing. It's why it's important to raise awareness and take action on research and spread information on the Down Syndrome Registry.
I've said it before, and I'll say it again, you put any baby in an institution without stimulation, love, opportunities to grow and learn ... of course they won't learn anything!
Along with the institutionalization there was the attitude that there was no reason to do research that would help with a better quality of life.
Things have changed and thanks to research more is understood about Down syndrome. Despite the fact that Down syndrome remains the most common chromosomal disorder but the least funded by the NIH, research is being done by a number of organizations who realize the importance of research and Down syndrome.
They are discovering that by researching the genes and secrets that are held on that 21st chromosome they can also research medical mysteries beyond Down syndrome - issues like Alzheimer's and cancer.
Even as recently as 5 years ago I blogged about individuals with Down syndrome having a higher chance of being diagnosed with leukemia, but also a higher chance of beating cancer.
Does Study Of Down Syndrome Hold A Possible Cancer Cure? is a more recent article bringing light to the need for research on the 21st chromosome and the positive impact it can have on a larger part of society. "Therefore, our friends and relatives with Down syndrome are, even if unintentionally, enabling discoveries about how cancers develop and how to combat them."
Exactly. Research is important and it's why we support the work that organizations like LuMind Foundation, Research Down Syndrome, Global Down Syndrome Foundation, just to name a few, are doing. It's why it's important to raise awareness and take action on research and spread information on the Down Syndrome Registry.
Thursday, September 11, 2014
Retirement Tour Marathons
It's official.
My husband, Joe, is retiring from the Air Force after 22 years. How I feel about that is a post for another day.
This post is about his 'retirement tour' - the races he'll be running in by the end of this year.
He registered to run in his third Air Force Marathon and I half-jokingly said to him that he should do a 'retirement tour' and make it military-related since he's retiring from the military.
So he took up the challenge.
He'll also be running in the Marine Corps Marathon and the Army Ten Miler.
For each race he will also be running for Research Down Syndrome - as he's done in the past. RDS Mission is to "...fund and support scientific research directed towards the development of safe and effective drug therapies that will improve memory, learning, and communication in persons with Down syndrome and address the increased likelihood for Alzheimer's disease."
Any donations to Joe's fundraising page is much appreciated.
Fundraising Websites - Crowdrise
My husband, Joe, is retiring from the Air Force after 22 years. How I feel about that is a post for another day.
This post is about his 'retirement tour' - the races he'll be running in by the end of this year.
He registered to run in his third Air Force Marathon and I half-jokingly said to him that he should do a 'retirement tour' and make it military-related since he's retiring from the military.
So he took up the challenge.
He'll also be running in the Marine Corps Marathon and the Army Ten Miler.
For each race he will also be running for Research Down Syndrome - as he's done in the past. RDS Mission is to "...fund and support scientific research directed towards the development of safe and effective drug therapies that will improve memory, learning, and communication in persons with Down syndrome and address the increased likelihood for Alzheimer's disease."
Any donations to Joe's fundraising page is much appreciated.
Fundraising Websites - Crowdrise
Friday, March 28, 2014
Research Down Syndrome Runners in the Making
Last Friday, for World Down Syndrome Day, we participated in a virtual run/walk event sponsored by Research Down Syndrome Runners. The virtual run/walk happened anywhere and you could make your own variation of 3-2-1. The mom who organized our event set it up as a 3.21 mile run/walk.
Lucas heard me talking about the event we were doing and that you could run for 3 min and 21 sec, you could walk around your block 3.21 times, you could run 3.21 miles etc. He said he wanted to run for 3 min and 21 sec.
So Joe and Lucas started out running with the other runners. Joe set his stop watch. When 3 minutes and 21 seconds were up he told Lucas they could stop running and finish it out by walking. He said Lucas just looked up at him with a big smile on his face ... and kept running. And kept running. Joe was wearing jeans, so he stopped running. Lucas hung in there with the race organizer and ran the whole 3.21 miles in about 30 minutes.
We had no idea that he was going to do that, much less that he could do it. He basically ran a 5K out of the blue. So proud of my little guy!
Later he asked "Is that run only on Down Syndrome Day?"
I told him that particular one was, but there are a lot of runs that happen all the time. He said he wanted to do another run.
I told him he was going to be like his dad running races for Research Down Syndrome. I pointed out the logo on all of our shirts and how people run for RDS to raise money; then the money goes to scientists and researchers who are studying Down syndrome and how to help people with Down syndrome. I asked him if he wanted to run like that - to run for RDS and raise money for them.
He was excited and said "Yes!" I turned to Kayla and said, "Kayla isn't that nice of Lucas? He wants to run for Down syndrome and raise money that will help people with Down syndrome."
Lucas chimed in, "Kayla I'm going to help you. I'm going to run for you!"
I love his heart. And I know there is an organization called I Run 4, where you can sign up and be matched to run for someone - but you can't request who you want to run for and you can't chose your own family member.
Maybe when he's older Lucas can get involved in something like that and run for someone else, but I love that right now ... he wants to run for his sister.
Joe is planning on running the Air Force marathon for the 3rd time and he also won the lottery for a bib number for the Marine Corps Marathon ... maybe one day Lucas will be running marathons with Joe.
In the meantime I'm signing him up for his first event: The Cooper River Bridge Kids Run.
But it won't be just Lucas; I'm signing Kayla up too. She signed up for the Running Club at school because 2 of her friends go and she wanted to go too. She just went to her first meeting and seemed to enjoy it. They practice running a mile and improving on their time each week. Kayla is active, but she's not quite a runner (she's just like me). She runs, but in spurts. And her running gait isn't very fluid. But this kids run is a mile, not a 5K. I think she can handle running/walking a mile; and I will be there to help encourage her.
Lucas was excited at the prospect of raising money, but he also wanted to know, "But do I have to send them ALL my money?" When I said yes, he sighed, "Ah man." Then I told him it's not actually his money, but money people donate to RDS in his name - for running a race. They support him with a donation and he supports RDS by running. So for their first event they'll both be running for RDS, but Kayla will also be running for herself. Self-advocacy has to start somewhere!
I've set them up with a Crowdrise page if anyone would like to donate a little something to their efforts. Thank you!
Fundraising Websites - Crowdrise
Lucas heard me talking about the event we were doing and that you could run for 3 min and 21 sec, you could walk around your block 3.21 times, you could run 3.21 miles etc. He said he wanted to run for 3 min and 21 sec.
So Joe and Lucas started out running with the other runners. Joe set his stop watch. When 3 minutes and 21 seconds were up he told Lucas they could stop running and finish it out by walking. He said Lucas just looked up at him with a big smile on his face ... and kept running. And kept running. Joe was wearing jeans, so he stopped running. Lucas hung in there with the race organizer and ran the whole 3.21 miles in about 30 minutes.
We had no idea that he was going to do that, much less that he could do it. He basically ran a 5K out of the blue. So proud of my little guy!
Later he asked "Is that run only on Down Syndrome Day?"
I told him that particular one was, but there are a lot of runs that happen all the time. He said he wanted to do another run.
I told him he was going to be like his dad running races for Research Down Syndrome. I pointed out the logo on all of our shirts and how people run for RDS to raise money; then the money goes to scientists and researchers who are studying Down syndrome and how to help people with Down syndrome. I asked him if he wanted to run like that - to run for RDS and raise money for them.
He was excited and said "Yes!" I turned to Kayla and said, "Kayla isn't that nice of Lucas? He wants to run for Down syndrome and raise money that will help people with Down syndrome."
Lucas chimed in, "Kayla I'm going to help you. I'm going to run for you!"
I love his heart. And I know there is an organization called I Run 4, where you can sign up and be matched to run for someone - but you can't request who you want to run for and you can't chose your own family member.
Maybe when he's older Lucas can get involved in something like that and run for someone else, but I love that right now ... he wants to run for his sister.
Joe is planning on running the Air Force marathon for the 3rd time and he also won the lottery for a bib number for the Marine Corps Marathon ... maybe one day Lucas will be running marathons with Joe.
In the meantime I'm signing him up for his first event: The Cooper River Bridge Kids Run.
But it won't be just Lucas; I'm signing Kayla up too. She signed up for the Running Club at school because 2 of her friends go and she wanted to go too. She just went to her first meeting and seemed to enjoy it. They practice running a mile and improving on their time each week. Kayla is active, but she's not quite a runner (she's just like me). She runs, but in spurts. And her running gait isn't very fluid. But this kids run is a mile, not a 5K. I think she can handle running/walking a mile; and I will be there to help encourage her.
Lucas was excited at the prospect of raising money, but he also wanted to know, "But do I have to send them ALL my money?" When I said yes, he sighed, "Ah man." Then I told him it's not actually his money, but money people donate to RDS in his name - for running a race. They support him with a donation and he supports RDS by running. So for their first event they'll both be running for RDS, but Kayla will also be running for herself. Self-advocacy has to start somewhere!
I've set them up with a Crowdrise page if anyone would like to donate a little something to their efforts. Thank you!
Fundraising Websites - Crowdrise
Wednesday, September 18, 2013
Running The Air Force Marathon
Research Down Syndrome funds and supports scientific research at
leading institutions that are studying the basis of intellectual
impairments in Down syndrome. One of the ways they are doing this is
with the RDS Runners program. They are charity sponsors with various
marathons around the country.
Last year my husband, Joe, completed his first marathon -the Air Force Marathon - as a runner for RDS. He also completed the Disney Half Marathon in Jan. Joe will once again be running in the Air Force Marathon on Sep 21st and raising money for Research Down Syndrome.
Down syndrome is one of the most common genetic conditions, but one of the least funded in the NIH. Research in Down syndrome isn't just DS-specific but extends to research connected with Alzheimer's and leukemia.
There are several current research studies happening now that are focusing on the why and how having the extra chromosome causes delays for people with Down syndrome; including how to 'turn off' the extra expression that happens in specific genes.
Research like this could possibly lead to medical therapies for intellectual disabilities to help improve memory and cognition which will allow people with Down syndrome to be more independent.
If you are able to donate to Joe's Crowdrise page for the marathon it is much appreciated!
Last year my husband, Joe, completed his first marathon -the Air Force Marathon - as a runner for RDS. He also completed the Disney Half Marathon in Jan. Joe will once again be running in the Air Force Marathon on Sep 21st and raising money for Research Down Syndrome.
Down syndrome is one of the most common genetic conditions, but one of the least funded in the NIH. Research in Down syndrome isn't just DS-specific but extends to research connected with Alzheimer's and leukemia.
There are several current research studies happening now that are focusing on the why and how having the extra chromosome causes delays for people with Down syndrome; including how to 'turn off' the extra expression that happens in specific genes.
Research like this could possibly lead to medical therapies for intellectual disabilities to help improve memory and cognition which will allow people with Down syndrome to be more independent.
If you are able to donate to Joe's Crowdrise page for the marathon it is much appreciated!
Monday, December 10, 2012
Run Disney
A few months ago Joe ran in the Air Force marathon - his first and not his last. He's signed up to run another marathon next month. This time we'll be joining him (for the location; not to actually run with him) for the runDisney Marathon at Walt Disney World. How could the family not go along?
The weekend of the marathon worked out great for us because Kayla doesn't have school that Monday; perfect for the travel day back home.
Guess we'll have to make some time to explore the new Fantasyland while we're there!
Once again Joe is running for/with the Research Down Syndrome (RDS) Runners. RDS supports scientific studies directed towards understanding the sources of cognitive difficulties in people with Down syndrome.
The weekend of the marathon worked out great for us because Kayla doesn't have school that Monday; perfect for the travel day back home.
Guess we'll have to make some time to explore the new Fantasyland while we're there!
Once again Joe is running for/with the Research Down Syndrome (RDS) Runners. RDS supports scientific studies directed towards understanding the sources of cognitive difficulties in people with Down syndrome.
Wednesday, September 05, 2012
Running for Down Syndrome Research
I'm not a runner, but my husband is becoming one. He ran the Cooper River Bridge Run earlier this year and is already signed up for next year.
He's currently preparing for his first marathon. He'll be participating, (appropriately enough since he is active duty Air Force thankyouverymuch!) in the Air Force Marathon.
Running and Down syndrome research have come together in the form of the Research Down Syndrome Organization. RDS is a non-profit organization supporting Down syndrome cognition research.
One of the ways they raise money is through running - Research Down Syndrome Runners/Race for the Extraordinary.
There are RDS Runners teams participating in races all across the country.
One of these races is the above-mentioned Air Force marathon that Joe is already signed up for. It was easy to connect the two and have Joe join the RDS Runners for his first marathon.... what could be better than running to raise awareness, support, and funding for Down syndrome cognition research?
There is also a team running in the Disney Marathon in January - he's planning on signing up for that too -quick family vacation to Orlando!
Here is Joe's Crowdrise Fundraiser page for RDS Team in the Air Force Marathon.
Good luck Joe!
He's currently preparing for his first marathon. He'll be participating, (appropriately enough since he is active duty Air Force thankyouverymuch!) in the Air Force Marathon.
Running and Down syndrome research have come together in the form of the Research Down Syndrome Organization. RDS is a non-profit organization supporting Down syndrome cognition research.
One of the ways they raise money is through running - Research Down Syndrome Runners/Race for the Extraordinary.
There are RDS Runners teams participating in races all across the country.
One of these races is the above-mentioned Air Force marathon that Joe is already signed up for. It was easy to connect the two and have Joe join the RDS Runners for his first marathon.... what could be better than running to raise awareness, support, and funding for Down syndrome cognition research?
There is also a team running in the Disney Marathon in January - he's planning on signing up for that too -quick family vacation to Orlando!
Here is Joe's Crowdrise Fundraiser page for RDS Team in the Air Force Marathon.
Good luck Joe!
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