Showing posts with label awareness. Show all posts
Showing posts with label awareness. Show all posts
Monday, October 30, 2017

Human Trisome Project

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The Human Trisome Project is a ground-breaking research initiative into Down syndrome and researching the medical complexities that can acc...
Sunday, October 29, 2017

If I Could Go Back

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Remember the online documentary about 5 roommates (4 with Down syndrome and 1 with Williams syndrome) in England called The Specials ?  T...
1 comment:
Saturday, October 28, 2017

Missing Out On Beautiful

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Missing Out On Beautiful is a collection of seven short essays about raising a child with Down syndrome written by Amy Julia Becker (autho...
1 comment:
Wednesday, October 25, 2017

Medical Research in Down Syndrome

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Down syndrome continues to be the most common genetic disorder and the least funded. There is so much to learn about the connections to the ...
Monday, October 23, 2017

Parenting and Perceptions (Repost)

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I originally posted this nine years ago . I occasionally still feel this way; so this is a good reminder to myself. ~~~~~~~~~~~~~~~~~~ As...
Sunday, October 22, 2017

Guardianship Thoughts

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Last week I watched a webinar about the Beyond Academicss Program at the University of NC Greensboro . Last year I blogged about how impr...
1 comment:
Saturday, October 21, 2017

Intelligent Lives - A Documentary

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Intelligent Lives is a new documentary film by the award-winning producer/director Dan Habib set to be released in 2018. The film follows t...
1 comment:
Wednesday, October 18, 2017

Woodbine House Books and DVDs

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I think Woodbine House is the largest publisher of books and DVDs for disability issues. They have a large collection of products organized...
1 comment:
Monday, October 16, 2017

That Taboo Topic

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Two years ago, during 31 for 21, I blogged about the importance of sex education for people with disabilities - and it's still importan...
Saturday, October 14, 2017

The Road We've Shared

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The Road We've Shared   (TRWS)"...focuses on caring for and supporting people who have Down syndrome and are over the age of 18......
1 comment:
Friday, October 13, 2017

Internships for People with Disabilities

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Some welcome news coming out of Albuquerque, NM about Presbyterian Rust Medical Center. The hospital has partnered with Adelante Development...
Thursday, October 12, 2017

Likable or "Leg"ible

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Because of her enunciation Kayla's speech sometimes takes some deciphering to figure out what she is saying. Thankfully she is usually a...
2 comments:
Tuesday, October 10, 2017

To My Younger Self

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I originally shared this "Letter to Myself" a few years ago, but wanted to repost it for 31 for 21 (Down Syndrome Awareness Month)...
1 comment:
Monday, October 09, 2017

Camp Rise Above

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Kayla and Lucas have been fortunate to attend a local camp that serves kids with different health issues for the past few summers. Camp Ri...
1 comment:
Monday, October 02, 2017

Buddy Walk, 2017

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Another year, another Buddy Walk in the books! Kayla looks forward to this day and has so much fun celebrating herself, and her friends with...
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Sunday, October 01, 2017

11th Annual 31 for 21

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Welcome to the 11th Annual 31 for 21 where we blog every day in the month of October for National Down Syndrome Awareness Month.  A couple...
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Thursday, August 10, 2017

Included In Archery

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Kayla's tried archery the past few years at a couple of the summer camps she attends and has generally seemed to enjoy it. Last year s...
5 comments:
Tuesday, July 18, 2017

The Twelve Mile Bike Ride

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I've been chronicling Kayla's journey to becoming an independent bike rider and two years ago she finally started riding a bike. ...
3 comments:
Monday, June 05, 2017

Better Late Than Never

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Last Memorial Day, not the one that just passed, but the one in 2016, Kayla had a dance recital. That's how behind this post is - a whol...
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Friday, March 31, 2017

She's Thirteen, Not Three

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This past Christmas I was at a crossroads with Santa. I also felt myself in a conundrum with wanting Lucas to believe for another year, but ...
3 comments: